Short answer

When designing for or with individuals who may have cognitive challenges, be prepared to adapt standard research methods to ensure their full and meaningful participation.

Field
User-Centred Design
Source
Dementia (2023)
Method
Scoping Review
Evidence
Moderate effect

Modifying standard qualitative research techniques is crucial for effectively gathering insights from individuals with dementia, ensuring their perspectives are not overlooked. This user-centred design research insight is drawn from a 2023 study published in Dementia. Using Scoping review, researchers explored how this design variable affects real-world outcomes. The key design takeaway: When designing for or with individuals who may have cognitive challenges, be prepared to adapt standard research methods to ensure their full and meaningful participation.

Study
User-Centred DesignRecentModerate effect

Adapting qualitative research methods significantly enhances inclusion of individuals with dementia.

Modifying standard qualitative research techniques is crucial for effectively gathering insights from individuals with dementia, ensuring their perspectives are not overlooked.

Dementia · 2023

01

Key Findings

  • 01A wide range of adaptations to qualitative research methods were identified, from minor adjustments to novel techniques like photo-elicitation.
  • 02The majority of studies provided rationales for method adaptation, often emphasizing accessibility and engagement.
  • 03Few studies systematically assessed the impact of their adapted methodologies on participant engagement or accessibility.
02

Application

Design takeaway

When designing for or with individuals who may have cognitive challenges, be prepared to adapt standard research methods to ensure their full and meaningful participation.

How to apply

When planning user research, brainstorm potential barriers for participants with diverse needs and develop alternative or modified approaches to overcome them.

Project actions

  • 01Consider using visual aids or simpler language when interviewing potential users.
  • 02Think about conducting activities in familiar or comfortable environments for participants.
03

Method & Evidence

AimTo explore the extent and nature of adaptations made to qualitative research methods to include people with dementia, and the rationales behind these adaptations.
MethodScoping Review
ProcedureA systematic search of primary studies using qualitative research methods involving people with dementia was conducted. Studies published between 2017 and 2022 in OECD countries were screened, and data on method adaptations, rationales, and impacts were extracted and analyzed.
ContextQualitative research involving individuals with dementia.

Variables

IVAdaptations to qualitative research methods.
DVInclusion and engagement of people with dementia in research.
CVType of qualitative research method, specific cognitive abilities of participants (though not explicitly controlled in the review, it's an implicit factor).
04

Strengths & Limitations

Strengths

  • +Provides a broad overview of current practices in adapting research methods for people with dementia.
  • +Identifies the common rationales for these adaptations.

Limitations

Adapting methods can be time-consuming and may require specialized knowledge or resources.

Reliability & validity

The reliability of the findings is supported by the systematic nature of the scoping review process. Validity is enhanced by the inclusion of multiple reviewers in the screening and data extraction, though the review's focus on existing literature means it relies on the validity of the original studies.

Think critically

What are the ethical considerations when adapting research methods for vulnerable populations, and how can designers ensure these adaptations do not inadvertently lead to bias?

05

Design Principles

"Inclusive research methodologies are fundamental to user-centred design."

In design practice, understanding the lived experiences of all potential users is paramount. When designing for or with vulnerable populations, such as individuals with dementia, standard research approaches may inadvertently exclude them. Adapting methodologies demonstrates a commitment to inclusive design and leads to more relevant and empathetic solutions.

06

What This Means for Your Design

To get good ideas from people with dementia for your design project, you need to change how you ask them questions or do activities, because normal ways might not work for them.

How to use in your project

  • 1.When discussing your user research methods, explain any adaptations you made and why they were necessary to include specific user groups.
07

Add to My Project

08

Quick Cite

Paragraph starter

To ensure comprehensive user insights, particularly from potentially vulnerable groups such as individuals with dementia, it is essential to adapt standard research methodologies. This study highlights that modifications to qualitative research techniques, ranging from minor adjustments to novel approaches like photo-elicitation, can significantly improve the inclusion and engagement of participants. Therefore, when designing for diverse user needs, consider how to flexibly adapt research protocols to capture a wider spectrum of experiences and perspectives.

09

Source

Dementia

Use of adapted or modified methods with people with dementia in research: A scoping review

journal · 2023

View source

Questions About This Research

What does the research say about adapting qualitative research methods significantly enhances inclusion of individuals with dementia?
When designing for or with individuals who may have cognitive challenges, be prepared to adapt standard research methods to ensure their full and meaningful participation. Evidence: Dementia (2023).
Why does "Adapting qualitative research methods significantly enhances inclusion of individuals with dementia." matter for design?
In design practice, understanding the lived experiences of all potential users is paramount. When designing for or with vulnerable populations, such as individuals with dementia, standard research approaches may inadvertently exclude them. Adapting methodologies demonstrates a commitment to inclusive design and leads to more relevant and empathetic solutions.
How can designers apply this research?
When designing for or with individuals who may have cognitive challenges, be prepared to adapt standard research methods to ensure their full and meaningful participation.
What were the main findings?
A wide range of adaptations to qualitative research methods were identified, from minor adjustments to novel techniques like photo-elicitation.. The majority of studies provided rationales for method adaptation, often emphasizing accessibility and engagement.. Few studies systematically assessed the impact of their adapted methodologies on participant engagement or accessibility.
What research method was used?
Scoping Review.
How strong is the evidence?
Evidence strength is rated Moderate effect, based on a 2023 journal from Dementia.
What should I do differently in my next project?
When planning user research, brainstorm potential barriers for participants with diverse needs and develop alternative or modified approaches to overcome them.
What are the limitations?
The review focused on qualitative research and may not capture adaptations in other research paradigms. The assessment of impacts on engagement and accessibility was limited.